Showing posts with label Social skills. Show all posts
Showing posts with label Social skills. Show all posts

Residential Summer Camp for Adults 18-26 with Developmental Disabilities!! Wow

I had to share this! There are not enough of these camps for our bigger kids. Camps and groups who offer quality programs are critical and need our support. It's not free, but there are organizations who offer grants for summer camp. My kiddo is not old enough to go yet. If anyone has gone and has feedback, or has any ideas on where to get grants, or more programs. PLEASE POST. 











CAN Camp 2015

Residential Summer Camp for Adults 18-26 with Developmental Disabilities

$1150 includes room, board and activities 

Campers stay in the dorms at California State University of Long Beach while enjoying activities in Long Beach. 

The focus of the camp is to experience independent living while practicing life and social skills in a supportive environment.   
  

For more information on CAN Camp please contact us by email at cancamp@autismla.org 
or by phone (562) 804-5556

Space is limited so get your application in early!





Testimony from campers

Chris said, "This was the best week of my life, I did not want to leave"

Kevin said, "Can Camp was the best time of my life!" (Now one of his favorite thing to do is paddle boarding)

Felix said, "It was amazing, I have not been able to do many of these things before with my    friends, I want to get a job so that I can live on my own"

Betty Pearson,John's Mom said"do you want to come back again next year and he said Yes! (John says yes to just about everything) his mother then asked "can I come too?" And John said No!!! His mother was stunned because he very rarely says no...

Betty Pearson, John's mom - I kept on hanging around camp when finally Terri said John is going to be fine. I left went to my car and cried, not out of sadness but out of happiness. Foir the first time I got a glimmer of hope that John can live an independent life.
   
Henry said, while jumping thru the waves at Bolsa Chica Beach," this is great! Also stating, Can we do this again? On his last day he asked can I go to Can Camp next summer?"


Marcus said, (a man of very few words) to Terri one of the Camp Directors, "I love you, I'm happy!" 


Ivan said, "I loved doing everything, but my favorite things were learning to boogie board and sitting around the campfire at Bolsa Chica Beach with my friends"
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Autism Society of Los Angeles 
8939 S. Sepulveda Blvd, Suit 110-788
Los Angeles, CA 90045

Play Stressful for Kids With Autism

Brain scans also reveal apparent lack of social recognition during video play, researchers say


FRIDAY, Feb. 13, 2015 (HealthDay News) --
Children with autism appear to approach play differently than typically developing children, a recent study contends. Article Link: http://www.webmd.com/brain/autism/news/20150213/play-may-be-more-stressful-for-kids-with-autism-study
"Children with autism lack a social component to their play and don't 'adjust' their play accordingly when another is involved," said study co-author Blythe Corbett, an associate professor of psychiatry at Vanderbilt University in Nashville. 
"For example, they tend to interact less with other children and show a preference to play alone or nearby with objects even when other children are near," she said.
Autism is a developmental disorder in which children have trouble communicating with others and exhibit repetitive or obsessive behaviors. About one in 68 children in the United States has been diagnosed withautism spectrum disorder, according to the U.S. Centers for Disease Control and Prevention.
In the new study, researchers conducted a series of experiments with 42 children, aged 8 to 12, who either had an autism spectrum disorder or were typically developing. The investigators collected samples of cortisol, a stress hormone, from the children's saliva before and after playing on the playground with another child.
"The arousal level of the children with autism during play suggests that interaction with peers can be quite stressful," Corbett said. "In this study, we also found a relationship between brain activity during play, behavior and stress level."
All of the children underwent brain scans while playing a computer game in which they believed they were playing a real person half the time and a computer the other half.
"Typical children showed vast differences based on play with human versus computer partners," Corbett said. "While we know that children with autism have difficulty with social play, the current study showed that the brain patterns of children with autism spectrum disorders activate similar brain regions regardless of whether they are playing with a child they met or playing with a computer partner."
One expert said the study, published recently in the journal Social Cognitive and Affective Neuroscience, had limitations.
"This study is attempting to provide some level of physiological measure to assess how children with autism spectrum disorders respond differently from neurotypical children during play," said Dr. Glen Elliott, chief psychiatrist and medical director of Children's Health Council in Palo Alto, Calif.
But he pointed out aspects of the study that limit its usefulness, such as only including children with autism who had higher IQs (at least 80). The study also only showed that changes in the brains of children with autism existed, but not why they existed.
"We cannot use the data to infer an understanding of how brains of children with autism spectrum disorders differ from those without autism," Elliott said. "It may well be that the children with autism understood the rules in ways different from [comparison] children. If so, that difference in understanding may be the cause of the difference in brain scan results."
So what does "play" look like for children with autism? Elliott said that depends on the severity of their condition, their interest in an activity and their level of mental functioning.
"In general, children with autism are less able to do pretend play and less able to put themselves in the position of trying to understand what someone else may be thinking or feeling," Elliott said.
The aspect of the study that rang true for parenting a child with autism was the stress of socializing, said Shannon Des Roches Rosa, of Redwood City, Calif., whose 14-year-old son has autism. That stress may even be greater under artificial circumstances, such as a lab, she said.
"Mostly I've learned to let my son do the kind of play that makes him happy rather than prod him toward the kind he 'should' be doing," Des Roches Rosa said. "What may not look like play by non-autistic standards is deeply satisfying to kids like my son."
Her son's play usually involves intense sensory activities, such as kicking balls back and forth or jumping on a trampoline, she said. He also enjoys his iPad, particularly apps that can be activated with focused tapping, she added.
Corbett said that the play of children with autism tends to be more repetitive and more focused on computers, videos and technology than on engagement with other children.
For children with autism, some social-skills programs with peers might help increase interest in social play while reducing stress, she suggested.

"Parents can provide opportunities for children with autism spectrum disorders to play with positive, supportive peers to enhance their interest, motivation and aptitude to play with others," Corbett said. "It may help to reduce the amount of computer use and play with videos."
Elliott said this study may not offer many insights to parents of children with autism because they already know that getting them to play with peers is difficult.
"Perhaps they [parents] can take heart in the possibility that studies like this are beginning to map out what parts of the brain engage in certain activities," Elliott said. "But that is a long way from figuring out how to change the observed differences."


A MUST WATCH VIDEO!!! What Happened When Young Boys Were Told To Hit A Girl?


Every boy should watch this video, especially our boys!  I found this and I loved it. I showed it to Nick and he loved it, he got it. I used it to help him verbally express his feelings about girls. It was a beautiful site to behold. Watch this, love it, share it for the good of both our boys and our girls!  

What Happened When A Bunch Of 

Young Boys Were Told To Hit A Girl?

What Happened When A Bunch Of Young Boys Were Told To Hit A Girl
What happens when you ask young boys to hit...

Bullies without Boundaries! Ice Bucket Challenge turned into sick joke against teen with autism

How is it that some people always find a way to turn something wonderful into something horrific. Once again, one of our unsuspecting kids who could never conceive doing something so horrible to another person is abused. So sad. I am speechless. 





**Important note: The family asked that we show the video to make other parents aware of bullying.**
BAY VILLAGE, Ohio – Police are investigating an alleged case of bullying involving a teenager with autism who took the ALS Ice Bucket Challenge.
“Once we found out about it, we were just horrified,” said Diane, the mother of the Bay High School student.  She claimed her youngest son was videotaped as feces, urine, spit and cigarette butts were dumped on his head by a group of juveniles.
“I want these kids held accountable for what they did to him and they targeted somebody who just didn’t really understand what was going on,” she said.
FOX 8 News is not identifying the family by last name to help protect their son.
According to the victim’s mom, Diane, the video was discovered on her 15-year-old son’s cell phone. She, along with her husband and other son, Jacob, wants it to be made public.
“I mean, the first thing that popped into my mind was like, why could someone – how could someone do this?” said Jacob. “How could someone really be this cruel to someone?”
In the video, the boy with autism is seen standing in the driveway of a home off school grounds. He’s wearing only his underwear as a bucket of fluid is poured from the roof of the garage. The bucket allegedly contained a mix of bodily fluids instead of ice water.
“He was embarrassed because he did not know what the contents were until afterwards and then he didn’t want anybody to know,” said his mom. “They used his phone to tape it and they put it up on Instagram.”
“This is just too far. It’s really bad,” said his brother, Jacob.
The Bay Village Police Department was made aware of the alleged incident on Wednesday. According to Det. Kevin Krolkosky, criminal charges could be filed.
“It’s disturbing to watch, you can obviously tell that somebody has been taking advantage of there,” said the detective.
Det. Krolkosky met with the parents and said it’s not a prank; it’s possibly a crime committed on the boy with autism by a group of juveniles who could face delinquency charges.
A spokesperson for Bay High School, where the victim is a student, said they’re now working hand-in-hand with police as they investigate.
“Obviously, if possible, we do want to hold those individuals accountable for their actions,” said Det. Krolkosky.
The police are just beginning their investigation and we’re told it could take a few weeks to file charges but they have a good idea who was involved.
“The bucket challenge is supposed to be raising awareness for this disease and now they’ve turned it into a sick joke,” said the victim’s mom. “I just can’t understand why kids would do something this cruel.”
The boy’s mom and dad wanted the video released to make other parents aware of bullying so they’ll have a conversation with their kids on how to treat people.

Autism and Surfing; A Must See Video of Pure Joy

This was one of our most special days. Nick loves the water and I always thought he would love surfing, but until some great folks showed up willing to teach him it just wasn't an option.

Riddle Me This- When is it Okay to be Happy Your Son is So Sad he's Crying Hysterically?

When is a mom happy that her son is crying? When her son has autism and he's crying because he knows she's mad at him! It's the best. J 

Who would have ever imagined that I would be watching my son crying deeply sad, almost hysterical sobs and inside I would be saying "Yahoo!!".  

I am so happy. This was a big moment because so many things happened that are an everyday event for neuro typical kids, but not for kids like Nick with autism who lack basic social emotional connections. This is a critical moment because we have been working on helping Nick recognize, understand and hopefully care about the emotions of others for 14 years! It's compassion and empathy that connect human beings and it's where the line is drawn between most of us and dangerous sociopaths. So this event combines critical break through's that keep us from hurting one another. First break through; he knew he had broken the rules and that was a bad thing.  Second, he knew I was angry and he knew he caused it.  Third, and the biggest one of all, he cared that I was upset! He cared how I felt, so much so he broke down in tears. 

I'm sitting here thinking back to the hundreds of times I've faked situations to get a compassionate response and he was totally unresponsive.  I remember throwing myself on the ground in our driveway pretending to be hurt, just to have him walk over me and go in the house. I've pretended to be drowning, having a heart attack or saddened by his actions to get little more than a glance, or he would say "Sad" and walk away. His were observations, not connections and not compassion. Don't get me wrong. If Nick knew he did something wrong based on your response, he could adjust his behavior, but there is a difference between a behavior response, and empathy. 

Until this moment, he's never responded in a way that showed this depth of both empathy and understanding.  Until now, we had no idea that it hurt him to have us angry with him -  not because he would not earn something but - because he cares what we think of him and how we feel.  

Would Our Kids Have More Friends If They Were Better Dancers?

I wonder if anything would be different if Nick had moves like Jagger! Would he be cooler at school?  Would cool moves get him asked to the Prom? I'm just saying :). 

Scientists Discovered What Makes Someone A Good Dancer

Sex Ed Missing For People With Autism Spectrum Disorder

I was listening to a 30 something man with high functioning autism and I felt a profound sadness when he shared this simple truth ...

“Sometimes I feel pretty lonely. I like to drink tea and sometimes tea is meant for sharing.".
       
My focus for the last 13 years has been on whatever stage of the process Nick was in. 

First it was early diagnosis and his health then early intervention, then inclusion, proper school settings. Most recently I'm thinking about surviving puberty, community safety, housing and employment related things. Sexuality was on my mind as it related to puberty, inappropriate behaviors and keeping him safe - but not so much in terms of sexuality and relationship building. 

I've had mom's mention getting Nick in a sex ed class and I consciously took no action because I thought it was inappropriate, over his head, out of his sphere of interest and understanding. But hearing this man speak was just one more shift, one more bonk on the head, one more reminder of my limited thinking when it comes to seeing Nick as a complete person, in this case a complete man. 

This is definitely another example of Nick's future being impacted by my limitations, more than his. Okay, seems a special ed class is in our future. Still feels funny. I've gotta get over it. 

If you're on this part of the journey here's some info I found.  If I had any doubt that I was slow to the party this website confirmed it!

http://www.autismsexeducation.com/






Bullying Causes Significant Short-Term Emotional And Physical Consequences For Children With Autism

Combating Bullying

A New Study from the IAN Finds Bullying Causes Significant Short-Term Emotional And Physical Consequences For Children With Autism
This is no surprise, its just confirmation. The study confirmed what everyone knows, that children with autism spectrum disorders (ASDs) are especially vulnerable to bullying. I remember how kids bullied special needs kids when I was in school and it was ugly then, just as it is now. I hated seeing it and never imagined that my child would be a target of such ugliness. That being said, there are many reasons why I have worked to keep my son included in a public school vs electing for a non-public school, not the very least of which is my commitment to teaching my son how to exist in the general population, and giving the general population an opportunity to be freed from their fear of the unknown by getting personally acquainted with one of the 1 in 55 boys who have autism.
 In our case Nick, to the best of my knowledge has only been directly bullied twice. One resulted in a bloody nose, but it was worth it because he wasn't badly hurt and we got to watch the kids in his general education class powerfully stand-up for him! His participation in general education make him a part of the community where some kids grew to like him and appreciate him for him. But I know all of our kids are not having such a good outcome, and for that matter it's not going so great for Nick in high school.  I have few solutions, however I just learned that the The Interactive Autism Network (IAN) released initial results of a national survey on the bullying experiences of children on the autism spectrum. The study found that a total of 63% of 1,167 children with ASD, ages 6 to 15, had been bullied at some point in their lives. In other words, children with ASD are bullied at a very high rate. If that’s not upsetting enough, the report stated that they are also often intentionally “triggered” into meltdowns or aggressive outbursts by ill-intentioned peers. To me this is torture of another human being and our schools need to take a strong stand, every time, and so do we!! We all need to know our kids rights so we can make a difference. Here’s a link to the Special Needs Anti-Bullying Toolkit which includes the Top Ten Facts Parents, Educators and Students Need to Know.  specialneeds.thebullyproject.com It’s well worth the click, it's like a step by step guide on what to do, and how to do it. Thanks IAN.
Bullying Causes Significant Short-Term Emotional And Physical Consequences For Children With Autism
I found additional  information on the Autism Speaks Website and you can Click here to read the IAN report. 

First No Shoes at the Airport and Now No Pass's at Disneyland!

Rumor has it some families where getting disability passes saying their child had autism and then SELLING cuts in line to park guests making it possible for anyone with $ to get on the rides fast! What the heck! The consequence, no more disability passes for guests with autism. Instead we will get a pass to come back to a ride at a certain time. I don’t know about your kid, but for me taking my son right up to the desired item, and then taking him away, is going to present a whole new series of challenges!! Our families have so many challenges and this seemingly tiny thing in the big picture of life with autism may not seem like much, at least for my family, its a HUGH deal. 

Why, does it matter. One one had it was the one day I could count on for my typical teen daughter to appreciate her brother, and even think maybe it’s not so bad keeping him around and it was a day I could be sure to keep him calm enough to have a great time without meltdowns, which is the secret sauce to a good family day. The actions of a few bad apples sets in motion decisions that hurt us all.  We will ever get, that we’re all connected?

Let's move on to those we are working to help. Below is a response from Autism Society Los Angeles, complete with links at the bottom for you to send a message and try to improve the situation.  Let’s get this corrected! Respond to the links below...it only takes 2 minutes!!!!!

THIS IN FROM ASLA
Many of you have heard about the change in the way that Disneyland will handle guests with disabilities.

At the Autism Society of Los Angeles, we have received emails and calls from many of you about your concerns about this new policy. Please know that our organization, which works directly in the community, were not consulted on these new procedures and we share your concerns. 
  
ASLA issued the attached press release this week and were subsequently contacted by Disneyland representatives to hear our views.  


Disney is definitely going ahead with the change but they are willing to speak with us if the program does not accommodate some in our community.  
  
Judy Mark our Government Relations Co Chair has been approached by a news organization to ask us to monitor the situation for their reporters and to write an Op-Ed on how the new system is working.  

So this is where we need your help...

The change goes into effect on 10/09/13 and we are hoping that some of you would be willing to take your child with a disability to Disneyland on that day or the few following days into the weekend and report to Judy on how your visit went.  
  
We plan to have one or more people from ASLA go to Disneyland as well, particularly on theSaturday October 12th.  Judy or another ASLA representatives will be at the Guest Relations and the kiosks. speaking to families about how the new system is affecting their day at the park.
  
Please contact Judy Mark by e mail at judymark@earthlink.net if you are willing and able to be a participant in this new system.
  
She will be sure to connect with you before you arrive and while you are in the park. Please feel free to pass this email on to other families who may be interested.
  
We know that this issue is not the most important challenge that our community faces and our organization faces.  Honestly, we wish that we could get 30,000 people to sign a petition fighting the severe budget cuts to our developmental disability system, but we understand personally how important Disneyland is to many children and adults with autism and other disabilities.  For many of you, it is the one place that our whole family can truly enjoy together.  
   

ASLA is committed to representing the families' concerns to Disney so please keep us posted if you are able to assist.  In the meantime,
ASLA will also be collecting comments, concerns and stories. Please direct them Caroline Wilson at execdirector@autismla.org  
  
We want to hear from you and will be taking you comments to Disney.
  
You can also sign petitions on:


  
 They are hearing us and we think we have a chance to make this better.  


The Number of Adults with ASD is Expected to Increase by 1,292% by 2020

Store Clerk????
Yesterday Nick saw a new doctor. As goes the routine, I described autism as defined by Nick. When the doctor told me that Nick was doing great, as compared to so many of his other clients, there was no part of me that jumped up to applaud our progress.  Instead, I thought about how much further I wish Nick was. We are doing pre-vocational training teaching him to shop and do daily chores, which he now does flawlessly.  Yet, my first thought was had I done all I could, was it enough to make a difference. Then I got really sad as I thought about all the boys he must be talking about who will enter adulthood without even the “life skills” Nick has.  For the hundredth time I thought dear God, what’s going on with our almost adult boys, what is this doctor seeing? When I got home I looked up stat’s and here’s what I found.   

The Number of Adults with ASD is Expected to Increase by 1,292% by 2020, and no one is prepared. 

An estimated 80 percent of autistic Americans receiving services are under the age of eighteen. In front of us is a tsunami of young adults, who once they hit their 21st birthday, all of the support that they had from school or behavioral health services comes to a screeching halt, which translates into actual negative outcomes for autistic adults. 

From 2005 to 2010, there was a 179 percent increase in autistic adults, and that number is expected to increase by 1,292 percent by 2020, according to the Department of Public Welfare.

Most states have minimal state-funded programs for autistic individuals over 21. Pennsylvania, a leader compared to the rest of the country has only 2, who collectively, only helped 456 out of about 7,000 autistic adults in 2012.

This lack of adult services is chronic in the US where one in four adults with autism reported that they needed, but were not receiving vocational training, career counseling or supported employment and more than 50 percent reported an unmet need for mental and emotional health services in general.

Imagine the future when this generation of disabled children becomes dependent on the taxpayers for their support and care. Or, a world where they live in institutions and are lined up along walls to get their showers by way of violent fire hoses.  Sound unbelievable, it's not. That was the life in the late past of the last decade.  

We can make a difference. We have too. 

News Alert, Part 2 – Hormone Oxytocin as a Treatment for Autism, the Cautions

A Cautionary Note On
Oxytocin as a Treatment for Psychiatric Disorders 

(Science News)

The hormone oxytocin is known for its widespread effects on social and reproductive processes, and recent data from intranasal administration in humans has produced hope for its use as a therapeutic in autism, schizophrenia, and other disorders.

However, this leap to human use is happening without previous animal studies of long-term oxytocin administration, and without knowledge of the neurobiological mechanisms involved in the behavioral findings. A new study now published in Biological Psychiatry indicates that the promising short-term effects often observed after a single dose of oxytocin may not translate to positive effects after long-term administration.

This research was led by Dr. Karen Bales, Professor and Vice Chair of Psychology at the University of California. She and her colleagues examined the long-term effects of oxytocin treatment using the prairie vole, a small rodent that forms strong life-long pair bonds and is thus often used in studies of social behavior. Both male and female voles were treated with one of three dosages of intranasal oxytocin, administered daily from weaning through sexual maturity. During this time, the researchers observed and recorded the voles' social interactions. They also conducted tests of social and anxiety-related behaviors in the adult voles, after the oxytocin treatment had finished, allowing them to measure any long-term effects.

As expected, oxytocin treatment increased social behavior in male voles, similar to the effects repeatedly observed in humans. However, the long-term effects were concerning, with male voles showing deficits in their typical behaviors. "In this study, we showed that long-term exposure to oxytocin in adolescent male prairie voles led to disruption of social bond formation in these males as adults," explained Bales. "Male prairie voles which received a dose similar to that being tested in humans, or even a lower dose, did not form pair-bonds normally with their pair-mate. Instead these males chose to associate with a strange female."

This important finding should suggest caution in the long-term use of intranasal oxytocin in developing humans.
"The fact that long term treatment with oxytocin had the opposite impact of initial doses with the same substance suggests that special strategies will be needed if oxytocin is ever to become a long-term treatment for autism or schizophrenia," said Dr. John Krystal, Editor of Biological Psychiatry.


Bales agrees, and added, "In our continuing research program, we also have preliminary data suggesting that these treatments caused long-term changes in the oxytocin system. Additional animal work, carried out in close consultation with the psychiatrists carrying out clinical trials, will be necessary to use intranasal oxytocin in an informed and responsible way."
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